| kinderpalliatief.nl | Knowledge Center for Pediatric Palliative Care | The center addresses legislation regarding extended youth care for young adults aged 18 to 23. The website explores the cultural and religious aspects of discussing the limits of medical possibilities, with particular attention to the interests of the child and the wishes of the family. Care providers work closely with the family and the child, taking into account their perspectives and needs, and offer a second opinion if necessary. | Medical Care & Services → Pediatric & Child Health 2121 | spiritual care 34 palliative care 140 legislation 593 culture 3922 child 11566 care 12338 | |
| nefro.nl | Dutch Federation for Nephrology | The NFN brings together professionals and provides current guidelines, news, and an agenda with events such as the Summerschool, the AI in Nephrology Symposium, and Renal Highlights. Recently, Liffert Vogt has been appointed as the new president of the NFN, and articles have been published on topics such as Avacopan for ANCA-associated vasculitis. The federation has an official home in Utrecht, with a postal address and contact information available for professionals and patients. | Organizations → Professional Associations 1004 | guideline 344 patient 4082 news 15293 event 45199 | Stichtse Vecht → Breukelen 632 |
| annafonds.nl | Stichting Anna Fonds | NOREF | The foundation focuses on facilitating education for orthopedic residents and young surgeons through fellowships and study stays. In the coming years, the focus will shift to the development of artificial intelligence (AI) and machine learning (ML) within orthopedics. The board and the Scientific Advisory Board have strengthened their ambitions with a clear focus on these new developments and subsidy allocation. | Research & Academia → Medical Education 183 | fellowship 53 orthopedics 65 ai 2181 research 8967 education 13471 | |
| urimon.nl | Urimon | The Urimon research study investigates measurable changes in urine and blood that occur during the early stages of serious diseases. The goal is to develop a personalized disease warning system that can detect diseases early, leading to better treatment outcomes. The website provides information about participating in the research, the procedure, and the benefits of such a system. | Body & Movement → Preventative Care 344 | urine 34 blood 44 disease 285 participant 1934 research 8967 | |
| lpn-s.nl | National Pain Working Group NICUs | In 1993, the working group was established as a response to a national survey that indicated a need for nursing policy regarding pain in newborns. The working group, composed of nurses and scientists, represents all Neonatal Intensive Care Units (NICUs) in the Netherlands. Summaries are available for parents to reduce pain in healthy newborns and pain in hospitalized newborns. | Physical Therapy → Pain Therapy 936 | pain treatment 12 nurse 261 pain 1919 | |
| blikonline.nl | BLIK Journal for Audiovisual Culture | The website provides information about the journal’s editorial team, offers access to exclusive articles and interviews, and allows for the purchase of print issues. Visitors can also access older editions of the journal through an open access account. The site features sections for news, reviews, press releases, a gallery, subscription options, past editions for purchase, team member introductions, and a call to support the journal. | Books → Art Books 41 | edition 157 journal 294 article 6000 | Netherlands → Utrecht 48901 |
| orgaandonatiedewaarheid.nl | Organ Donation De Truth | The website addresses the question of what happens to a person after death and whether they are truly dead as an organ donor, emphasizing that donation occurs after being declared dead, but not necessarily after death. It offers a detailed explanation of the various protocols used to determine brain death (DBD-protocol) and circulatory death (DCD-protocol), as well as the definitions of these concepts. The website also presents a ‘black book’ describing the final hours of an organ donor and discusses relevant questions and answers about organ donation. | Disease & Treatment → Medical Information 305 | donor 757 | |
| parkinsonnext.nl | ParkinsonNext | The website provides a space for visitors to brainstorm or participate in research projects, and contains information about ongoing studies and archived news articles. ParkinsonNext will be discontinued at the end of 2024, after six years of operation, during which nearly 4,000 people with Parkinson's disease, relatives, and caregivers shared their experiences. The website still contains the pages 'participate' and 'researchers', although the information on those pages is no longer current. | Research → Scientific Research 243 | parkinson 120 patient 4082 technology 6816 research 8967 news 15293 | |
| transid.nl | Trans-ID | The research focuses on identifying warning signs preceding changes in mental health, examining patterns within complex dynamic systems. Participants record their daily experiences via a smartphone and are equipped with wearable sensors for measuring heart rate and movement. The research is divided into three sub-projects: TRANS-ID AFBOUW (discontinuation of antidepressants), TRANS-ID HERSTEL (psychological treatment), and TRANS-ID TRAILS (young adults at high risk of psychopathology). | Measurement → Sensor Technology 25 | heart rate 29 diary 212 mental health 400 movement 2304 research 8967 | |
| swopresearch.nl | SWOP-Research | The foundation was established on August 31, 2006, in Rotterdam and is legally located there. The website provides information about the foundation, its goals, and the research projects it supports, as well as how donated funds are used. Recent news and developments within the supported research projects are published on the website, such as the promotion of Sebastiaan Remmers with his dissertation on the natural history of prostate cancer. | Medicine → Oncology 230 | prostate cancer 33 donation 5110 foundation 6678 research 8967 news 15293 | Bodegraven-Reeuwijk → Reeuwijk 531 |
| bloedgeven.nl | Floris Lindeman | The website was started in 2011 by Floris Lindeman, who was diagnosed with leukemia and motivated to recruit donors. Lindeman has recruited over 5000 donors through the website, originally aiming for 1000. The site offers a way to register as a blood donor and includes features like login, subscription, and reporting incorrect content. | Online & Digital → Digital Services 1008 | blood 44 donor 757 | |
| bloedcellen.nl | Bloedcellen.nl | The website addresses aspects of privacy and cookies, and describes how personal data and cookies are used. Bloedcellen.nl warns that the content should not be considered a replacement for professional medical advice and offers information on various blood diseases and conditions. The website contains an overview of blood groups, blood values, blood composition, and blood plasma, as well as information on blood donation and blood transfusion. | | blood testing 21 blood 44 | |
| tulipsforchildhealth.nl | TULIPS | TULIPS is a foundation dedicated to promoting scientific research in the field of child health by educating young researchers and encouraging multidisciplinary collaboration. The foundation organizes the Grant Writing & Presenting Weekend, an event where participants can order tickets. Additionally, TULIPS organizes the NVK Science Symposium, which provides a platform for 5 young researchers in pediatric medicine. TULIPS offers educational curricula for clinical researchers and creates partnerships with diverse stakeholders to improve research quality and maximize impact on child health. | Disease & Treatment → Medicine 1017 | researcher 220 foundation 6678 research 8967 network 11123 education 13471 event 45199 | |
| margavanamersfoort.nl | Weten Wat Je Niet Weet | The website discusses the unrest that arose in America regarding silicone breast implants, particularly following media attention on lawsuits. It describes how the FDA requested long-term studies from the manufacturers, but these were lacking, leading to a voluntary moratorium. The website presents a video of a discussion between a plastic surgeon and a lawyer about alleged fraud by the manufacturers of silicone breast implants, and references the role of David Kessler, former FDA commissioner. | Essential → Health 91589 | surgeon 59 lawsuit 89 research 8967 | |
| psdresearch.nl | PSD Research Foundation | The organization conducts research and trials on sinus pilonidalis and organizes scientific symposia. It offers a patient platform for people with this condition. The website publishes scientific articles, such as studies on the etiology of sinus pilonidalis and various surgical strategies. | Disease & Treatment → Rare Diseases 229 | symposium 339 study 720 donation 5110 research 8967 | |
| stichtingreggeborgh.nl | Stichting Reggeborgh | The foundation provides information about its activities in documents such as the policy plan, financial overview, and activities report. The board of directors of Stichting Reggeborgh consists of three people who hold the positions of chairman, treasurer, and secretary. Website visitors can download policy plans, financial overviews, and activities reports. | Charities → Fundraising 1005 | financial overview 14 policy plan 114 charity 700 board 3438 research 8967 | Rijssen-Holten → Rijssen 1048 |
| geefomdiabetes.nl | Diabetes Foundation | The research focuses on preventing brain diseases such as dementia, stroke, and depression in people with type 1 diabetes, as they occur more frequently than in people without diabetes. Dr. Thomas van Sloten, an internist and researcher at UMC Utrecht, is motivated to investigate the causes of these brain diseases and prevent them, as they have a significant impact on the lives of patients and their families. The website’s goal is to collect donations to enable Dr. Van Sloten to start this crucial research and ultimately develop a treatment to prevent brain diseases in people with type 1 diabetes. | Medical Care & Services → Specialty Medicine 3657 | diabetes 750 donation 5110 research 8967 | |
| tijdschrift-complement.nl | Tijdschrift Complement | The journal was published from May 2013 to December 2020 and consisted of 29 editions. In 2020, Tijdschrift Complement decided to discontinue its activities and no new editions would be published. Orders for existing editions are still possible, as long as stock lasts, and can be placed via the website. | | edition 157 journal 294 therapy 7448 practice 9089 | North-Brabant → Breda 9003 |
| astrosofica.nl | Astrosofica | The website presents various articles and concepts, including 'Bag-o-Bones' as an approach to human structure and 'The Illusion of Neptune' as a critical perspective on astrology. It is argued that the medical science employs a biomechanical and biochemical approach to the human body, and that this approach is useful for understanding the physical aspects of humans. The website suggests that, despite the success of science in understanding the physical aspects, the origin and driving force behind the 'biomass' (the human body) is still unknown. | Philosophy → Metaphysics 38 | moon 57 universe 79 sun 209 | |
| kankeronderzoeknederland.nl | Kankeronderzoek Nederland | The foundation focuses on financially supporting cancer research, with 95% of donations allocated to this purpose. Current cancer treatments are criticized for their long duration and limited effectiveness, with traditional methods described as 'burning, cutting, and chemo'. The organization advocates for a natural approach to finding a more effective cancer treatment and invites visitors to donate or consider a legacy. | Diseases → Cancer 546 | medicine 435 cancer 631 donation 5110 research 8967 nature 9094 | |
| medicalresearchconsulting.nl | Medical Research Consulting | The company provides support with setting up, conducting, and finalizing scientific research, as well as expertise in evidence-based advice and the development of guidelines. Medical Research Consulting was founded by Nina Molenaar, a clinical epidemiologist with experience in research methods and a background at the Mount Sinai hospital in New York. The website emphasizes the importance of well-executed scientific research to improve healthcare quality and aims to prevent unnecessary or poorly executed studies. | Medical Research → Clinical Trials 61 | researcher 220 guideline 344 hospital 560 research 8967 | |
| pobhelp.nl | Leiden University Medical Center (LUMC) | The POB-HELP study is a research project exploring a decision rule for the treatment of chest pain, utilizing the Marburg heart score rule and a troponin point-of-care test. The website contains information about the study's setup and execution, as well as updates on its progress. Users can contact the researchers via the website for questions or suggestions. | Disease & Treatment → Cardiovascular Diseases 91 | study 720 | South-Holland → Leiden 7089 |
| afdeutmanresearchfonds.nl | Stichting A.F. Deutman Oogheelkunde Researchfonds | The fund stimulates and finances excellent scientific research of high quality, primarily at the Radboud University Medical Center in Nijmegen, where complex ophthalmological conditions from across the country are treated. Recently, research has been funded into hereditary retinal abnormalities, with the expectation that gene therapy will be applicable within a few years for incurable conditions leading to blindness. Furthermore, research is supported into prevention and better treatment of age-related macular degeneration, the most common cause of poor vision in the Netherlands. | Medical Care & Services → Ophthalmology 92 | fund 1063 donation 5110 research 8967 | Gelderland → Nijmegen 9384 |
| worksoflove.nl | Qode Interactive | The website features a series of blog posts categorized under headings such as ‘Metafysica’ (Metaphysics), ‘Neuroses,’ and ‘Orakels’ (Oracles). Several blog posts reference ‘De rode draad’ (The Red Thread), a recurring theme suggesting a guiding force or path through life. External references include information about Tissot’s involvement at the Milan Expo 2015, providing cultural event information to tourists, and a partnership with Rokivo. | Philosophy → Metaphysics 38 | blog 13392 | |